Book – Disjointed | Navigating the diagnosis and management of hEDS and HSDs

This is probably the most important book of the year about EDS and HSD. It is a compilation of essays by a group of patients, carers, doctors, specialists and therapists, covering a wide range of topics.

Link to the Table of Contents is here.

Link to purchase is here. Note shipping outside of USA is via an external website Alibris.com and through an independent seller – it took nearly 1.5 months for my book to arrive in Australia this way. An ebook version is also available.

Book: Disjointed by Jovin D et al (2020)

Chronic fatigue in hEDS – Hakim A et al 2017 article review on Physio Network

chronic fatigue

This is my latest review on Physio Network of a paper written by a pioneering group of EDS experts – Hakim A et al 2017. It remains to this day one of the most important papers on chronic fatigue in the EDS population. Physio Network has made this review open access. Link to the Physio Network review article is here. Link to the original published paper is here (also free access).