Orthostatic Intolerance/ POTS/ Dysautonomia

Resources:

  1. Orthostatic Intolerance in HSD/hEDS by Prof Peter Rowe (YouTube Video)
    This is a really useful YouTube video published by the EDS Society on the physiology, clinical presentation and management of Orthostatic Intolerance (OI) (also commonly referred to as POTS, although we now understand POTS is a subcategory of OI).
  2. Autonomic Dysfunction in those with HSD/hEDS by Dr Alan Hakim
    – this article covers information on symptoms, laboratory testing and management
  3. Dysautonomia International Resources:
    Types and causes of Dysautonomia
    – What is Postural Orthostatic Tachycardia Syndrome (POTS)?
  4. Joint Hypermobility Syndrome and Postural Orthostatic Tachycardia Syndrome -HyPOTS by Mandel D et al (2017)– (free full text)
  5. Dysautonomia and its underlying mechanisms in the hypermobility type of Ehlers–Danlos syndrome by De Wande et al (2014) (Abstract here)
  6. Dysautonomia and Fatigue
    These powerpoint slides by Dr Simmonds (2018) are also really useful for those with Dysautonomia and Fatigue – the resource includes some tips on exercise and rehabilitation strategies.
  7. Dysautonomia and Craniocervical Instability (CCI)
    This is a YouTube presentation by Dr Fraser Henderson at the EDS Nashville Conference in 2019. He lectures on the anatomy, physiology and functions of the autonomic nervous system, including the system’s relationships with POTS, chiari, and CCI etc.
    Slides from the Youtube presentation here.
  8. Exercising versus propanolol for those with Postural Orthostatic Tachycardia Syndrome by Fu et al 2011
    • this is a highly cited research paper justifying postural training for those with POTS to restore upright hemodynamics
  9. Compression Garment Reduces Orthostatic Tachycardia and Symptoms in Patients With Postural Orthostatic Tachycardia Syndrome (POTS)
    • 2021 article published on the Journal of American College of Cardiology on the efficacy of using compression garment for POTS – full text (pdf) is accessible via this link
  10. The Dysautonomia Project.org
    … and its common coexisting conditions list
    … and the top 10 non-pharmacological treatments 
    … and the top 20 dyautonomia drugs