Orthostatic Intolerance/ POTS/ Dysautonomia

Research Papers:

  • Mast Cell Activation Syndrome (MCAS), POTS and EDS
    • The relationship between mast cell activation syndrome, postural tachycardia syndrome, and Ehlers-Danlos syndrome (2021) – abstract link here
    • The Relationship Between Hypermobile Ehlers-Danlos Syndrome (hEDS), Postural Orthostatic Tachycardia Syndrome (POTS), and Mast Cell Activation Syndrome (MCAS) (2020) – abstract link here
  • Using the PEOP Model to Understand Barriers to Functioning in Postural Orthostatic Tachycardia Syndrome (2021) – full texthere
  • Prevalence of gastrointestinal, cardiovascular, autonomic and allergic manifestations in hospitalized patients with Ehlers-Danlos syndrome: a case-control study (2021) article by Brooks et al – abstract here.
  • Compression Garment Reduces Orthostatic Tachycardia and Symptoms in Patients With Postural Orthostatic Tachycardia Syndrome (POTS) (2021) article published on the Journal of American College of Cardiology on the efficacy of using compression garment for POTS – full text (pdf) is accessible via this link
  • Clinical symptoms and results of autonomic function testing overlap in spontaneous intracranial hypotension and postural tachycardia syndrome: A retrospective study (2018) – full text here.
  • Joint Hypermobility Syndrome and Postural Orthostatic Tachycardia Syndrome -HyPOTS by Mandel D et al (2017)– (free full text)
  • Dysautonomia and its underlying mechanisms in the hypermobility type of Ehlers–Danlos syndrome by De Wande et al (2014) (Abstract here)
  • Exercising versus propanolol for those with Postural Orthostatic Tachycardia Syndrome by Fu et al (2011) (free full text)
    • this is a highly cited research paper justifying postural training for those with POTS to restore upright hemodynamics

General Resources:

  • Dysautonomia International:
  • The Dysautonomia Project 
  • 2019:
    • Dysautonomia, Orthostatic Intolerance and Fatigue Orthostatic Intolerance in HSD/hEDS by Prof Peter Rowe 
      • YouTube video on the physiology, clinical presentation and management of Orthostatic Intolerance (OI) 
    • Dysautonomia and Craniocervical Instability (CCI)
        • Youtube presentation by Dr Fraser Hendersen. Video link here. Slides link here
    • Vitamin deficiencies & POTS by Dr Svetlana Blitshteyn  
        • Vimeo video by the founder of the Dysautonomia Clinic presented at Dysautonomia International Conference in 2019
  • 2018:
    • Connecting the dots with EDS, POTS, MCAS, GI, Neurological and Physiotherapy in managing pain in EDS by Dr Pradeep Chopra (Assoc Prof in Pain Medicine) – 2018 presentation here.
    • Exercise and rehabilitation strategies:
      • Dysautonomia and fatigue management – powerpoint slides by Dr Jane Simmonds (2018) 
  • 2015: