Dr Charles Shepherd: “(ME/CFS) is not being tired all the time…it is actually quite easy to diagnose in the vast majority of cases…most people will present with being fit, young adults…they will say ‘I was fit, well, I got an infection, I didn’t recover from it…I kept on feeling unwell, flu-like symptoms…and I have these very characteristic muscle and brain symptoms, exercise-induced muscle fatigue.’
My latest Physio Network blog on upper cervical instability (CCI, AAI) in those with hypermobility – link here.
Link here for latest podcast by our Not Just Bendy Founder and Principal physiotherapist Sharon Hennessey on Insight Osteopathy discussing:
- assessment tools
- rehab goals and program
- hypermobility comorbidities
- educational resources
- craniocervical instability etc.
This is probably the most important book of the Year 2020 about EDS and HSD. It is a compilation of essays by a group of patients, carers, doctors, specialists and therapists, covering a wide range of topics.
Link to the Table of Contents is here.
Link to purchase is here. An ebook version is also available.
This is my latest review on Physio Network of a paper written by a pioneering group of EDS experts – Hakim A et al 2017. It remains to this day one of the most important papers on chronic fatigue in the EDS population. Physio Network has made this review open access. Link to the Physio Network review article is here. Link to the original published paper is here (also free access).
My latest research article review of a 2020 paper by Dr Brad Tinkle summarized in Audio, and available for free thanks to Physio Network. Click on link here to listen.
I’ll like to highlight an informative podcast interview with Dr Brad Tinkle published by Hypermobility Happy Hour (HHH). Dr Tinkle is a Clinical Geneticist and a well-published author of books and scientific articles on hypermobility and Ehlers Danlos Syndrome. The 2 part series podcast discussed the challenges associated with diagnosis, practical tips on management including some basic exercise and rehabilitation principles, and navigating a complex medical system. The podcast can be assessed from Hypermobility Happy Hour on Apple Podcast or here – search for “Interview with Dr Brad Tinkle”. Highly recommend.