This is my March 2021 research review for Physio Network on Pain Management in the Ehlers-Danlos Syndromes by Chopra et al 2017. This review is open access – link here. Link to the original published research paper is here.
This is probably the most important book of the Year 2020 about EDS and HSD. It is a compilation of essays by a group of patients, carers, doctors, specialists and therapists, covering a wide range of topics.
This is my latest review on Physio Network of a paper written by a pioneering group of EDS experts – Hakim A et al 2017. It remains to this day one of the most important papers on chronic fatigue in the EDS population. Physio Network has made this review open access. Link to the Physio Network review article is here. Link to the original published paper is here (also free access).
I’ll like to highlight an informative podcast interview with Dr Brad Tinkle published by Hypermobility Happy Hour (HHH). Dr Tinkle is a Clinical Geneticist and a well-published author of books and scientific articles on hypermobility and Ehlers Danlos Syndrome. The 2 part series podcast discussed the challenges associated with diagnosis, practical tips on management including some basic exercise and rehabilitation principles, and navigating a complex medical system. The podcast can be assessed from Hypermobility Happy Hour on Apple Podcast or here – search for “Interview with Dr Brad Tinkle”. Highly recommend.
Starting 29 April 2020 (Wednesday), I will be offering face to face consults again at Physiotec but with limited hours available to restrict the number of staff and patients on-site. Telehealth appointments will still be available for those unable to travel to the clinic.
Please contact our friendly reception at Physiotec to organise an appointment at 0733424284 or email@example.com. Do let the reception know of your preference – face to face or telehealth.
Thank you for your understanding. Stay safe and healthy!
Link to all the Ehlers-Danlos & COVID-19 resources can be found here, but I would like to highlight 3 of the most useful ones below:
The EDS, hypermobility & Covid-19 resource. This is an excellent resource for those with EDS, HSD and associated comorbidities. It provides advice specific to those with EDS and Gastrointestinal issues, Dysautonomia and for those who are pregnant etc.
The Live Chat Virtual Support resource. Zoom support groups are available and some of the sessions are facilitated by medical doctors but note that individual medical advice will not be provided in session. Click on the link to find out which sessions you might wish to attend.
The Ideas for When Homebound resource. This is a really fun link for individuals and those with children who are getting bored at home from the coronavirus lockdown! I’ve used the links and visited the virtual British Museum, and it inspired me to also look up the virtual Pompeii museum which by far is my favourite. I hope you’ll find something to enjoy in there!
If you have the appetite for more serious hypermobility and EDS resources, click on the library of links I’ve collected here. The resources available on my website have been filtered down from a heap of readings I’ve encountered so I’m hoping the ones published will be useful for you.
Also, my really awesome colleague and mentor Sharon Hennessey has just launched her website notjustbendy.com. She’s got some excellent resources in there too so go take a look!
I have temporarily ceased face-to-face consultations due to COVID-19. However, I am still available for Telehealth consultations for new and existing patients.
A thorough and quality assessment and management plan can still be provided via Telehealth to discuss your needs for ongoing self-care whilst home-bound.
Via Telehealth, you will be prescribed exercises on Physiapp which allows you to access your individually tailored program on the web, mobile phone (Android or iOs), iPad and Apple watch. Included in the app are high quality videos and instructions (see sample pictures below taken from my Apple phone and watch).
Please contact our friendly reception at Physiotec to organise a Telehealth appointment at 0733424284 or firstname.lastname@example.org
Thank you for your understanding and stay safe and healthy!
*Note- Telehealth appointments are not available for USA and Canadian residents as the Australian physiotherapy indemnity insurance does not cover these regions.